{"product_id":"shelter-from-the-storm-caring-for-a-child-with-a-life-threatening-condition-9780738205342","title":"Shelter from the Storm: Caring for a Child with a Life-Threatening Condition","description":"Critically ill and unlikely to survive. A recent Harvard University study on pediatric end-of-life care has shown that the medical community is failing such children and their families. Indeed, in their effort to be ever-hopeful and cure-oriented in the face of a child's terminal illness, they neglect to advise parents on the basics of emotional support for all family members, pediatric pain medication, and the need for making plans and worst-case preparations. \u003cp\u003e\u003c\/p\u003e Based on the National Advanced Illness Coordinated Care program and the stories and advice gleaned from co-author Joanne Hilden's years of work as a pediatric oncologist, Shelter from the Storm fills this advice-and-caregiving void. A compassionate road map to what the family may have to face, what they may be asked to decide, and how they might want to involve their child in the decision-making, Shelter from the Storm will help parents and caregivers make informed, loving, and protective choices on behalf of their children in the most trying of times.\u003cbr\u003e\u003cbr\u003e\u003cb\u003eBinding Type:\u003c\/b\u003e Paperback\u003cbr\u003e\u003cb\u003ePublisher:\u003c\/b\u003e Da Capo Lifelong Books\u003cbr\u003e\u003cb\u003ePublished:\u003c\/b\u003e 12\/18\/2002\u003cbr\u003e\u003cb\u003eISBN:\u003c\/b\u003e 9780738205342\u003cbr\u003e\u003cb\u003ePages:\u003c\/b\u003e 240\u003cbr\u003e\u003cb\u003eWeight:\u003c\/b\u003e 0.70lbs\u003cbr\u003e\u003cb\u003eSize:\u003c\/b\u003e 8.72h x 5.34w x 0.56d\u003cbr\u003e\u003cbr\u003e\u003cstrong\u003eReview Citations: \u003c\/strong\u003e\u003ci\u003eLibrary Journal\u003c\/i\u003e 01\/01\/2003 pg. 144\u003cbr\u003e\u003ci\u003eLibrary Journal\u003c\/i\u003e 01\/15\/2003\u003cbr\u003e","brand":"Joanne Hilden, Daniel Tobin, Karen Lindsey","offers":[{"title":"Default Title","offer_id":36641078771868,"sku":"9780738205342","price":16.99,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0473\/0804\/6492\/products\/img_ac10aa44-fe7b-4331-9a24-ac2e6a1ac646.jpg?v=1603853107","url":"https:\/\/pastforward.org\/products\/shelter-from-the-storm-caring-for-a-child-with-a-life-threatening-condition-9780738205342","provider":"Past Forward","version":"1.0","type":"link"}