{"product_id":"rare-threads-a-life-with-prader-willi-syndrome-9781923087170","title":"Rare Threads: A Life with Prader-Willi Syndrome","description":"\u003cp\u003eIn Rare Threads: A Life with Prader-Willi Syndrome, Sebastiaan Van Nuissenburg shares the poignant journey of raising a child with two\u003c\/p\u003e\u003cp\u003erare genetic conditions. From the overwhelming joy of birth to the stark realities of being the parent of the only child in the world to be born\u003c\/p\u003e\u003cp\u003ewith Prader-Willi Syndrome UPD \u0026amp; Chromosome 16 microdeletion, Sebastiaan offers a raw and honest portrayal of the mental challenges, \u003c\/p\u003e\u003cp\u003esacrifices, and triumphs encountered along the way. From infancy to the pivotal age of 10, readers are immersed in Sebastiaan's world as a parent, exploring effective strategies, pitfalls to avoid, and the quest to foster independence in their child. Seamlessly blending candid reflections with whimsical anecdotes, Rare Threads celebrates every child's\u003c\/p\u003e\u003cp\u003eindividuality and the unwavering love of extraordinary parents navigating uncharted territories.\u003c\/p\u003e\u003cp\u003eJoin Sebastiaan on this extraordinary journey filled with love, tears, laughter, and understanding as he unravels the rare threads that bind his\u003c\/p\u003e\u003cp\u003efamily together, offering hope and support to other families facing similar challenges. Rare Threads: A Life With Prader-Willi Syndrome Sebastiaan Van Nuissenburg\u003c\/p\u003e\u003cp\u003e\u003cbr\u003e\u003c\/p\u003e\u003cp\u003e\u003cbr\u003e\u003c\/p\u003e\u003cbr\u003e\u003cbr\u003e\u003cb\u003eBinding Type:\u003c\/b\u003e Paperback\u003cbr\u003e\u003cb\u003ePublisher:\u003c\/b\u003e Inspiring Publishers\u003cbr\u003e\u003cb\u003ePublished:\u003c\/b\u003e 08\/14\/2024\u003cbr\u003e\u003cb\u003eISBN:\u003c\/b\u003e 9781923087170\u003cbr\u003e\u003cb\u003ePages:\u003c\/b\u003e 240\u003cbr\u003e\u003cb\u003eWeight:\u003c\/b\u003e 0.96lbs\u003cbr\u003e\u003cb\u003eSize:\u003c\/b\u003e 9.00h x 6.00w x 0.65d","brand":"Sebastiaan Van Nuissenburg","offers":[{"title":"Default Title","offer_id":44683493769397,"sku":"9781923087170","price":29.74,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0473\/0804\/6492\/files\/img_252037b1-059f-40a9-8174-22eb392c58ef.jpg?v=1727796092","url":"https:\/\/pastforward.org\/products\/rare-threads-a-life-with-prader-willi-syndrome-9781923087170","provider":"Past Forward","version":"1.0","type":"link"}