{"product_id":"dancing-in-the-face-of-death-a-journey-of-love-caregiving-and-courage-amid-a-dementia-diagnosis-9798900520292","title":"Dancing in the Face of Death: A Journey of Love, Caregiving, and Courage amid a Dementia Diagnosis","description":"\u003cp\u003e\u003cstrong\u003eA story of choosing love, integrity, and courage when life changes everything\u003c\/strong\u003e\u003c\/p\u003e\u003cp\u003e\u003c\/p\u003e\u003cp\u003eWhen Susan's partner, Barbara, was diagnosed with the behavioral variant of frontotemporal dementia (bvFTD), a fatal genetic brain disorder, life as they knew it took an unexpected turn. In \u003cem\u003eDancing in the Face of Death\u003c\/em\u003e, Susan encapsulates their journey through this life-changing diagnosis, beautifully weaving together the challenges of caregiving and illness with the power of love and living intentionally.\u003c\/p\u003e\u003cp\u003e\u003c\/p\u003e\u003cp\u003eThis intimate memoir follows Barbara's experience as the first person in the US to receive a gene replacement in her brain as part of an FTD clinical trial. Even as Susan and Barbara navigated the changes and challenges brought by this disease, they continued to live with integrity, commitment, and courage. Susan captures both the most heartbreaking and heartwarming moments of their life together while also shining a light on the difficulties of anticipatory grief as a loved one changes before your eyes.\u003c\/p\u003e\u003cp\u003e\u003c\/p\u003e\u003cp\u003e\u003cem\u003eDancing in the Face of Death\u003c\/em\u003e is both a celebration of Barbara's fight for a cure and an effort to raise awareness for FTD, a condition that is often misdiagnosed and inaccurately treated. Susan and Barbara's story is a testament to how strength, devotion, and love endure-even in the face of loss.\u003c\/p\u003e\u003cbr\u003e\u003cbr\u003e\u003cb\u003eBinding Type:\u003c\/b\u003e Paperback\u003cbr\u003e\u003cb\u003ePublisher:\u003c\/b\u003e River Grove Books\u003cbr\u003e\u003cb\u003ePublished:\u003c\/b\u003e 06\/02\/2026\u003cbr\u003e\u003cb\u003eISBN:\u003c\/b\u003e 9798900520292\u003cbr\u003e\u003cb\u003ePages:\u003c\/b\u003e 332\u003cbr\u003e\u003cb\u003eWeight:\u003c\/b\u003e 0.98lbs\u003cbr\u003e\u003cb\u003eSize:\u003c\/b\u003e 9.00h x 6.00w x 0.74d","brand":"Susan L. Koen","offers":[{"title":"Default Title","offer_id":52679637500085,"sku":"9798900520292","price":16.96,"currency_code":"USD","in_stock":true}],"url":"https:\/\/pastforward.org\/products\/dancing-in-the-face-of-death-a-journey-of-love-caregiving-and-courage-amid-a-dementia-diagnosis-9798900520292","provider":"Past Forward","version":"1.0","type":"link"}